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博碩士論文 etd-0613117-140353 詳細資訊
Title page for etd-0613117-140353
論文名稱
Title
妥瑞症患者逆境經驗之敘事探究
The narrative research of adversity experiences of people with Tourette syndrome
系所名稱
Department
畢業學年期
Year, semester
語文別
Language
學位類別
Degree
頁數
Number of pages
362
研究生
Author
指導教授
Advisor
召集委員
Convenor
口試委員
Advisory Committee
口試日期
Date of Exam
2017-07-21
繳交日期
Date of Submission
2017-07-14
關鍵字
Keywords
敘事探究、妥瑞症、逆境經驗、復原力
narrative research, resilience, adversity experience, Tourette Syndrome
統計
Statistics
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The thesis/dissertation has been browsed 5713 times, has been downloaded 1584 times.
中文摘要
社會有套隱形的規範制約,那已成為「做人」就應該要符合的基本條件,但對妥瑞症的病患來說,常因為帶著外顯性的症狀,無法控制其抽搐與噪聲,無法符合這社會所期待與認同的樣貌。本研究將探討十位妥瑞症患者一路走來歷經病痛折磨與社會的人情冷暖,從生活逆境(life adversity)角度切入,探究逆境經驗及復原力的關係,本研究試圖了解受訪者生活中面臨的巨變,是什麼因素讓他們不屈不撓、鍥而不捨地向前?亦或是一蹶不振?透過敘事探究的方式,讓受訪者的聲音真實呈現。
本研究的書寫方式以「長青樹」做為脈絡發展的軸線,共分為六個章節。故事的一開始從「生命之源,根」做為故事的啟程;在「向上發展,成長」的章節,我將說明敘事的概念、思維、方法;並在「歲月之痕,樹幹」裡,做相關的文獻回顧而在「生命的脈動,葉子」裡將敘說書寫我自己在逆境經驗的成長故事與十位研究參與者的經驗敘事與分析,包括他們的家庭、求學、生活等各面向,生活逆境的過程及其意涵,是如何形塑個人的生活逆境或其他的主體經驗,而這個經驗又是如何建構或影響其人生,試圖找出屬於這段生命經驗的難能可貴。在「落葉歸根」裡,我歸納出此研究的發現與研究帶來的反思性。最後,在「新生命的誕生-永續」裡,透過這些歷程與過往,希冀能夠替未來創造什麼改變與期待。在十位受訪者敘事分析後可得知:
一、 使逆境不再逆境的特質:個體面對到逆境時,自我的因應策略與其個人特質,是影響個體如何決策與應對逆境經驗的關鍵。
二、重要他人的重要性:個體在面對逆境經驗時,重要他人的正向支持,視為助力。
三、家庭是否具有正向支持系統:具有正向支持之患者,在面對逆境復原力上,與沒有正向支持系統之患者,有明顯的差異性。
四、早期逆境經驗對個體之影響:同樣適逢早期逆境經驗之個體,在決策與應對往後逆境上卻有不同的應對策略與發展,盼日後研究有更明確的分析。
Abstract
Our society has developed an invisible norm which limits the basic requirement of being a human kind. To Tourette patients, however, they can’t meet the anticipation and recognition of the society since they are afflicted by the obvious symptoms, uncontrolled tics and noise. To justify the distress of the disorder and the indifference in the society, this research investigated ten Tourette patients from the view of life adversity. Also, the author focused on the relationship between adversity experience and resilience, trying to understand the significant life incident that these participants had undergone. What factor makes them filled with perseverance, move on continuously or even give in? Through narrative research, the voice of these patients can be completely presented.

The writing pattern of this article is based on the life stage of evergreen tree and consists of six chapters. Chapter 1 can be perceived as the beginning of the story. In addition, Chapter 2 explains the meaning and method of the narrative research; and then the relevant literature review was shown in chapter 3. Chapter 4 demonstrates that how the author successfully thrived from the adversity experience and analyzed the negative life experiences of the ten participants. These experiences include their family, school, daily life and so on; moreover, the researcher places emphasis on how the meaning and pattern of adversity shape one’s feelings and how these feelings affect their whole lives. I intend to find the mean value that belongs to their experiences. In chapter 6, the near end of the story, the author hopes that this thesis can engender some change or anticipation in the future. According to the narrative analysis of the ten patients, the author concludes:
A. The characteristics that mitigate adversity: When humans are confronted with adversity, self-responding strategies and personal traits are the keys that influence how they cope with the problem.
B. The importance of significant other: When we face adversity experience, the support of significant other can be very helpful and powerful.
C. Whether there is a support system in a family or not: The patients who have received support from others can significantly develop better resilience than those who do not have a positive support system.
D. The effect of early adversity experience on an individual: Although early adversity people experienced same struggle in their childhood, they may have totally different development and coping strategies toward the adversity when they grow up. More research and experiment are needed to substantiate this statement.
目次 Table of Contents
目次
論 文 口 試 委 員 會 審 定 書 ......................................................................i
誌 謝........................................................................................................ii
中 文 摘 要 ................................................................................................iii
英 文 摘 要 .................................................................................................iv
目 次........................................................................................................v
表 次.......................................................................................................vi
圖 次......................................................................................................vii
第一章 生命之源,根..........................................................................1
第一節 研究動機............................................................................1
第二節 研究目的與問題意識.......................................................2
第三節 重要名詞釋義...................................................................5
第四節 研究範圍............................................................................7
第二章 向上發展,成長......................................................................8
第一節 遇見敘事研究....................................................................8
第二節 敘事的理論脈絡..............................................................10
第三節 研究工具與資料蒐集.....................................................14
第四節 敘事分析的閱讀類型.....................................................18
第五節 類別-內容書寫的啟發與應用.......................................22
第六節 研究嚴謹性......................................................................25
第七節 研究倫理與研究限制.....................................................28
第三章 歲月之痕,樹幹................................................................31
第一節 妥瑞症介紹......................................................................31
第二節 妥瑞症相關文獻探討.....................................................32
第三節 逆境經驗之意涵與相關文獻........................................43
第四節 復原力之意涵與相關文獻............................................64
第五節 逆境經驗與復原力之關係............................................73
第四章 生命的脈動,葉子..........................................................77
第一節 我與妥瑞的逆境經驗故事............................................78
第二節 小鐵的敘事....................................................................124
第三節 小翰的敘事....................................................................139
第四節 小燁的敘事....................................................................155
第五節 小豪的敘事....................................................................172
第六節 阿甘的敘事....................................................................193
第七節 小樂的敘事....................................................................210
第八節 小伍的敘事....................................................................225
第九節 小尚的敘事....................................................................238
第十節 阿中的敘事....................................................................249
第十一節老莊的敘事..................................................................261
第五章 落葉歸根...........................................................................278
第一節 分析與歸納....................................................................279
第二節 研究者本身的反思.......................................................314
第六章 新生命的誕生-永續.......................................................318
第一節 在故事結束後的開始................................................318
後 記 : 綠 意 盎 然 ................................................................................320
文 獻 回 顧 ...........................................................................................321
附錄一........................................................................................345
附錄二........................................................................................347
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